DR.W. model Jurre – Epidermolysis Bullosa
Our first model: the story of Jurre.
Jurre was born on the 6th of July 2016 as the child of Reinder’s brother and sister in law. Jurre was born with Epidermolysis Bullosa (EB), a severe skin disorder that made Jurre a so called ‘butterfly child’. His skin as vulnerable and fragile as a butterfly. Jurre had no chance due to the type of this disorder he was born with. He died on 11th of September 2016, due to the complication and effects of this disease. However, other children do have a chance to live with this disorder. They need a lot of treatment and care which is costly. And with current medical developments, we are confident this disorder might be treated successfully in the future.
For the DR.W. watch dedicated to Jurre we will help by (financially) supporting ‘Stichting Vlinderkind’ (the Dutch Butterfly Child Foundation). Of course, you can also donate directly via their website. Thank you for your generosity!